桃園看 僵直性脊椎炎(AS) 的醫生? - 桃園
By Hamiltion
at 2016-01-15T23:15
at 2016-01-15T23:15
Table of Contents
我是退伍後一年開始有症狀
而且越來越嚴重
症狀就是一般僵直性脊椎炎的通症
就是早晨起床背部僵硬疼痛
這幾天已經發展成連翻身都很痛苦的地步
側睡會壓迫,感覺骨排內的臟器肌肉都在痛。
比較麻煩的是
我的HLA-B27驗血結果一直是陰性...
醫生是說95%會是陽性,但是5%會是陰性...
驗了兩次都是陰性...
所以醫生也不能開僵直性脊椎炎的用藥...
只能用現成的藥...
病情已經到了要靠止痛藥的地步..
還有一顆輕微類固醇的用藥了
(醫生當初都堅持非不得已不開類固醇的藥)
我去看的是龍群骨科的[李蒔青]醫生
他也有類風濕相關的專業
人很好也很有耐心,也會一直幫我換藥等
但是我開始有想換換其他醫生的念頭...
這幾年下來抽血快20次了
發炎指數一直降不下來
去照過X光也去照過核醫學照射
結果也都沒有問題...
非常擔心是有其他隱疾...
還自費去了長庚的全身健康檢查....
(那批受測我還是最年輕的)
也沒查到有腫瘤或癌症之類的...
但是已經痛到不能翻身,
比較特別的是我除了背
還多了一個地方就是腳踝關節附近的肌肉
已經痛到我無法正常走路
都一拐一拐的
不知道有沒有桃園的病友可以提供相關的醫生資訊?
以前不知道這種病
覺得周杰倫憑什麼可以不用當兵
現在發作起來真的是痛不欲生...
嚴重影響到生活作息了...
很無助
來版上求助各位...
藥都已經吃到有胃食道逆流的情況...
雙重傷害...
真的很無助....
--
而且越來越嚴重
症狀就是一般僵直性脊椎炎的通症
就是早晨起床背部僵硬疼痛
這幾天已經發展成連翻身都很痛苦的地步
側睡會壓迫,感覺骨排內的臟器肌肉都在痛。
比較麻煩的是
我的HLA-B27驗血結果一直是陰性...
醫生是說95%會是陽性,但是5%會是陰性...
驗了兩次都是陰性...
所以醫生也不能開僵直性脊椎炎的用藥...
只能用現成的藥...
病情已經到了要靠止痛藥的地步..
還有一顆輕微類固醇的用藥了
(醫生當初都堅持非不得已不開類固醇的藥)
我去看的是龍群骨科的[李蒔青]醫生
他也有類風濕相關的專業
人很好也很有耐心,也會一直幫我換藥等
但是我開始有想換換其他醫生的念頭...
這幾年下來抽血快20次了
發炎指數一直降不下來
去照過X光也去照過核醫學照射
結果也都沒有問題...
非常擔心是有其他隱疾...
還自費去了長庚的全身健康檢查....
(那批受測我還是最年輕的)
也沒查到有腫瘤或癌症之類的...
但是已經痛到不能翻身,
比較特別的是我除了背
還多了一個地方就是腳踝關節附近的肌肉
已經痛到我無法正常走路
都一拐一拐的
不知道有沒有桃園的病友可以提供相關的醫生資訊?
以前不知道這種病
覺得周杰倫憑什麼可以不用當兵
現在發作起來真的是痛不欲生...
嚴重影響到生活作息了...
很無助
來版上求助各位...
藥都已經吃到有胃食道逆流的情況...
雙重傷害...
真的很無助....
--
Tags:
桃園
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